motherhood – Page 2 – Put Your Own Oxygen Mask on First

It’s a Wonderful Thing, A Mother

April 20, 2021April 17, 2022Meg

A print of James McNeil Whistler’s Mother hung on the wall of my childhood home for as long as I can remember. I always found her kind of creepy, to be honest, and the poem by Baroness Von Hutton affixed below it within the frame always felt so dark.

It's a wonderful thing, a mother;
other folks can love you, 
but only your mother understands.
She works for you,
looks after you,
loves you,
forgives you anything you may do,
understands you, and then the
only thing bad she ever does to you
is to die and leave you.

- Baroness Von Hutton

Of course since those days as a little girl staring up at this portrait and trying to understand it (and still trying to understand why it hung in the bathroom of all places), I have become an adult, and a mother, and my mother’s caregiver.

It’s been one helluva year for me and my mom. We have walked the line so many times between life and death. And she just keeps coming back dancing and laughing. Just this week she was hospitalized again. I found myself racing to her side, grateful to be freshly vaccinated but afraid I had missed my chance to be with her while she was still alive after over a year of distanced visits and screens between us. And, you know what? Even though there is only one way for this story to end, even though I have already lost so much of her to Alzheimer’s, the grief that overcomes me at intervals when I face the prospect of losing her remains immense. The words of Baroness Von Hutton resonate more clearly by the day.

My mom (and her sisters) are my guiding lights. I have noticed especially over the past year of isolation and quiet that my most profound and impassioned writing tends to be reflections on my relationship with these women. A Tribute to My Biggest Fan, Nancy Waddell, Practically Perfect in Every Way, Clips

I think about my mom and her two sisters (“Sisters, sisters, there were never more devoted sisters” is the Irving Berlin song that accompanies my memory of the three sisters together, they dancing to the beat and laughing) as I make my way through this world. And I try to channel Nancy and Ellen’s wisdom as I care for my mom.

I have begun to recognize more fully how these women were my champions throughout my entire life; how they showed me by their example what it is to be a strong, courageous, compassionate and caring person; how they showed up over and over again at ballet performances and soccer games, at Thanksgiving dinners and music recitals, at the hospital the day my kids were born. As I wrestle with the phone calls and texts and times together that I miss, though they are gone (or gone in most ways, in my mom’s case), they are always with me. They are a part of me.

I’ve got all of this on my mind, swirling in these emotional crescendos and troughs, when the MAIA Impact School (which, if you don’t remember, is what inspired me to find my voice and share it by starting this blog) announced it’s Nim Mama (“Great Mother” in the Katchiquel language of Guatemala) scholarship. The concept is centered on honoring our mothers and the collective strength, beauty, and transformative power of mothers the world over by investing in the education of an indigenous Guatemalan girl. The images of these pioneering, brave girls with their mothers at their side brought me to bellyaching tears. In these images I could see my mom and my aunts standing beside me, or pushing from behind me, saying, “Go. Be brave. Do great things.”

https://www.maiaimpact.org/nim-mama-event

This campaign renewed the call of these female pillars of my life to channel their strength and rise up to be the courageous, bold, passionate, brave woman they showed me how to be. I am living their values and honoring their legacy by returning the devotion my mom showed to me in my caregiving for her and passing the gift of their strength and love onto my children, both my daughter and my son.

This Mother’s Day, I will ACT for change in their names. I am investing $3,000 in MAIA’s Nim Mama Scholarship Fund, $1,000 each in honor of Ellen, Nancy, and Beth, the fiery, loving, devoted, caring, amazing women who paved the way for me. I can’t think of a better way to honor them than to live their values by working to create a more equitable and just world and launching the next generation of Girl Pioneers to pursue their dreams.

Join me April 29 for the launch event to learn more. Find your voice! Empower another to find hers!

Life is short. We don’t know when our time will come. Make – and be – the change you want to see in the world. Now.

Go out there and get after it!

Finding Sanctuary

February 10, 2021April 17, 2022Meg

For years after having kids and while taking care of my mom, I had to modify what I thought my life was supposed to be to accommodate what it actually was. I spent far too long trying to shove the round peg that is me into the square hole that was my expectations of myself. Life intervened. Lessons were learned (painfully).

Eventually I let go of some things and I adapted. I left the working world and focused more on my family and my health. It was disorienting and I was consumed by guilt and grief because I wasn’t living the identity I had constructed for myself of being a “working mom.” A paycheck validated my worth and provided confirmation that I was contributing substantively to the world, as sad as that is to acknowledge. Without it, and without a title, I felt diminished and like my tether to and meaning in the broader world had shrunk. My life was fully in the service of others, consumed with sports schedules and camp sign ups, meal planning and doctors appointments. I craved purpose and passion. I got dirty diapers and dishes.

All moms are working moms.
a dear friend pulling me out of the abyss

I couldn’t accept for a while that this was a point in time, a temporary passage and where I needed to be for then, but not forever. I felt like I couldn’t hack it (and of course I assumed as I looked around that everyone else could and was doing “it” better than I was). What was “it,” you might ask? I am not even sure. Life? Work? Or, better, that most elusive work/life balance? My go-to mentality when I am up against a wall is that I must not be trying hard enough. But I couldn’t get out of my own way, and as most people eventually realize walls are pretty solid things. I remember reading When Things Fall Apart by Pema Chodron and wanting to chuck it against the wall after the 13th page because what she prescribed was to sit with my discontent, essentially, and what I wanted was a to-do list to fix it.

When the pace of life and the noise in your head gets to be too much, where do you find sanctuary? For me, there’s nothing like the smell of warm pine needles on a forest floor, the lapping of lake water against an evergreen shoreline, a boulder-strewn mountain rising in the distance, the stillness of sitting quietly by a pond. No cellphones, no crowds, no distractions. With headspace I can reorient and find my center again.

But for the longest time when my kids were young, I couldn’t travel. The place I dreamed of, Mount Katahdin in Northern Maine, was simply too far away and my life was too busy and too consumed by caring for others for me to disappear into the wilderness. Eventually I would institute an annual pilgrimage to Katahdin, but what about all the time in between? I learned to seek elements of Maine closer to home, and to find stability and happiness within. This is what Pema Chodron teaches, but it took me a while to accept it. It’s still a work in progress. I still get wound up like a top and overwhelmed by life. I still am my own harshest critic. But I find my center by carving out time for exercise; laughing with good friends (always reliable for grounding); being curious and just saying yes! to something new sometimes; taking a walk in my suburban wilderness (often now with my dog); and delighting in the little things like a crisp blue sky, flowers, or a box of cookies arriving in the mail. These are highly recommended life hacks for moms and for everyone else who might feel like life is directing them versus the other way around.

Yesterday I was reminded, spectacularly, about the power of finding sanctuary, be that a mountain vista or a more traditional place of worship. At the end of a tour of historic properties in a small, central Massachusetts mill town, our tour guide invited us to see the interior of one of the local churches. As you might guess, I am more of a nature-than-built-environment-as-sanctuary kind of person, but I am also curious. We walked through a dark entry foyer, nothing of note. But as the door to the sanctuary opened, it was a like a curtain that had veiled and protected my heart through this long, challenging year of isolation, lowering expectations, and gracefully accepting our lot was swept aside. This sanctuary of towering ceilings, stained glass windows, and ornate carvings forced a long, deep inhale. This church, modest in presentation from the outside and unexpectedly, stunningly beautiful on the inside, restored part of me that I didn’t even know was missing. It jolted awake a part of my brain that I hadn’t quite even realized was dormant. It reminded me of all the beauty there is in the world, and that you often don’t have to go very far to find it. There are unexpected treasures everywhere, if we are willing to stretch ourselves, be open-minded, and pull open the door to see it.

So Much Still to Teach

October 6, 2020April 17, 2022Meg

She would laugh that we were so worried. I can hear her voice in my mind saying, if she understood, “What? About moi? Ridiculous.” She would probably be upset that we even sent her to the hospital in the first place. She is more of a stick-it-out-on-your-own, “I’m not sick, I just don’t feel well,” kind of person.

March 28 to June 5, 2020. That was the duration of my mom’s journey with COVID-19. She went to the hospital with gastrointestinal symptoms. We expected her to get fluids, be monitored for a little while in the emergency room, and then be sent home. Instead they tested her for the then recently arrived COVID-19, which I shrugged off as ER hypervigilance (leave no test un-run!). If only I could be there, I thought, I could explain to them what she can’t, that she always has a little cough and the sniffles. It’s nothing to worry about.

Her positive test result stunned us and resulted in her prompt admission to the hospital, where she tumbled into the black hole of a blossoming public health crisis and a rapidly filling hospital. She used to tell me not to set my expectations too high because then you just invite disappointment. When I heard “COVID positive,” my expectations were grounded pretty firmly in reality.

She endured 2 separate hospitalizations (I wrote about the first one in a HuffPost essay – ironically, it was published the day she was sent back with secondary complications). She ended up spending 3 weeks total in the hospital. She didn’t eat or walk for weeks; had pneumonia (mild, mercifully) and then a pulmonary embolism and thrush. She was poked and prodded every which way and was generally miserable and confused. We eventually made the decision to discharge her from the hospital on hospice with the goal of getting her to a situation where she was comfortable and surrounded by people who loved her (even if I couldn’t be one of them because, COVID, which is pretty much the answer to any question of this dystopian existence anymore). We hoped that with one-on-one attention in a familiar setting someone could get her to eat. And we were prepared, if not, for her to leave this world in peace and comfort.

It was a long, long road full of Boost protein shakes and brownies for breakfast (for her, and, some days, to be honest, for me, too, because, well, I had to find comfort where I could). It was days of phone calls with doctors and nurses and hospice workers and chaplains and family and funeral homes. It was a nurse praying with her as she lay quietly in her bed, telling her we loved her even though we couldn’t be there. It was short Facetimes with my mom and the aides working with her, the Sound of Music or My Fair Lady playing on her CD player in the background. It was texted images of her sitting in a wheelchair getting her nails done or painting during a group activity. It was videos of her shuffle-dancing around the dining room, supported by an aide, honoring the woman she was and infusing joy where they could into her life. It was reports about her learning how to walk again, first with people supporting her on both sides, then, slowly, a few steps on her own. It took about 6 weeks for the odds of her making it through this illness to shift in her favor. She doesn’t remember any of it, which may have been her saving grace. Because she has Alzheimer’s, she lives in this exact moment, and then this one, and then the next, with no reference to the past or the future.

Through, and despite, it all, she exuded her characteristic grit and indefatigable spirit. She gave my brothers and I fatigued smiles through the Facetime screen, her inner spark sometimes igniting in her eyes through the otherwise wan expression on her face. More recently we have received videos of her humming a tune and dancing down the hall to the beat of her literal own drummer. Her laughter echoes like the first birds of spring after a long winter, issuing robustly and sweetly through the air, quickening the rhythm of my heart and flooding my soul with warmth. I only just realized as I listened more intentionally to her laugh, absorbing more fully this sound that so recently I thought I would never hear again, that her laugh echoes the sound of my own.

I guess it wasn’t her time. I guess she still has more to do here on this Earth, more to teach. I don’t know what else to say about how close we walked to the line, and then how she suddenly walked it back. She would say, “What did you expect? Of course I lived. Maybe don’t take life so seriously. Maybe don’t count me out just because the prognosis looks bad (really bad). Now tell me about you. How are you?”

I find myself speechless at times in her presence, my mind bending as I try to reconcile what happened to her and to our family during those months and the vast loss of life during this COVID outbreak, with her physically sitting there still with me, smiling, laughing, and full of LIFE. We sit outside on the patio at her care home admiring the trees and sky, listening to the river, singing or just sitting quietly. She still appreciates beauty in the world: a clear blue sky, a gentle warm breeze. She will close her eyes and tilt her chin upward, breath deeply, and smile broadly, completely at peace, 100% her authentic, younger self, the mom I remember. Post-COVID, she is back to walking unassisted, dance parties, eating, singing, giving back rubs, smiling, and laughing – lots of laughing. She doesn’t have much to say, and doesn’t understand much of what I tell her, but she knows I am someone special to her. She lights up like it’s a surprise party every time an aide walks her outside and she sees me standing there. On some biological level we are still connected, even if she can’t remember my name. She would like to give me a hug, reaches for me, but we sit and tap our toes together instead, a small physical connection that doesn’t potentially jeopardize either of us. COVID kisses. It’s the best we can do for now.

I recognize that I am one of the lucky ones. My mom returned to me from the brink, and she returned bubbling with happiness and love to share. She still has so much to teach, not only to me, but to all of us: about enjoying the simple things in life, like a warm breeze and a blue sky; about what it means to be fueled by love, to be guided by an inner joie de vivre; about dancing and laughing through life, no matter what; about resilience and grit and never, ever counting someone out or giving up, no matter the odds; about how deeply the love between a mother and her child runs, and how it’s still recognizable when all else is lost.

When it comes time to say goodbye, whenever that may be, I hope I will be able to be there and to hold her hand. In the meantime, I am counting my blessings and following her lead: taking a deep breath; embracing unbridled joy; seeking daily, small moments of happiness; loving my family and friends hard; smiling and laughing often; feeling grateful for every day I still have mom on this Earth; and living as close as I can to this very moment, and then the next one and then the next, moment to moment to moment. Even now. Especially now.

My mom survived COVID-19 and has lived gracefully with Alzheimer’s for over 7 years. She still exudes love and compassion for others. She still smiles and laughs. She is still the life of the party. She continues to be an example to us all about a life well-lived, no matter what. She would say, “This too shall pass.” And it will.

Mask up. We got this.

#Youwillbealright

#Wearethesolution

#Wearamask

100 Days of Quarantine

June 18, 2020April 17, 2022Meg

Yep, that’s right. I’ve been counting. I may be a day or two off because it all blurred together and I couldn’t tell what day was what for a while there, but I am calling it today and sticking to it!

What does this mean? Traditionally, in my experience, preschools and elementary schools celebrate the 100th day of school. The 100 days of school typically signifies that you are over the hump of the school year and on the downward slope toward summer break (that’s my interpretation anyway, no one ever actually explains WHY we are doing this). It drives me nuts, to be honest, because it’s pretty arbitrary and usually involves some sort of project with 100 objects that requires my assistance to collect, coordinate, and recoup after it goes to school. But damn if those traditions don’t just stick in your brain whether you like them or not! And, I mean, come on, 100 days is a freaking long time and a nice, round number so let’s at least notice it if not celebrate it! As far as I am concerned, these 100 days is 1/3rd of a freaking bizarre year and worth reflecting on no matter how many days are still to come.

The 100 days of not being in school? The 100 days of isolation? The 100 days of digging deep (sometimes really, really deep) to find gratitude? The 100 days of riding a roller coaster without ever leaving home?

Are we over the hump of coronavirus now? I suspect not really. Maybe we are over one hump, the first sin wave, but this bizarre period is not yet over. So the trouble I have with this 100 days is that there is no end in sight, and that still incites a little panic and overwhelm at times. I refuse to use the term “new normal.” I hate it. I prefer something like “the way things are for now.” For now is always a good way to approach uncertainty and change. It implies acceptance of the present but knowledge that the future might be different, though when that future comes is unclear.

Photo by Breakingpic on Pexels.com

Photo by Lina Kivaka on Pexels.com

Photo by Markus Spiske on Pexels.com

I am trying to remember what life was like 100 days ago. I still prefer life from 101 days ago, I am certain of that, but am pleased with the mental shift that’s occurred in between. Those early days were LONG. And confusing. And depressing. I would go to bed knowing I had nothing to look forward to in the morning. I am a do-er and a busy bee so the idea that I had nowhere to go and nothing to go do tanked me at first. It felt so heavy, like so much work to get up and just make it through another day. I’ve mentioned before how I felt like coronavirus teleported me to the 1950s as a housewife, right? I swear that’s the truth of it. I wrote in my quarantine journal on March 31, “I missed 16 whole days in writing this journal. How is that even possible? Well, I’ll tell you how it’s possible. Because life right now is this twilight zone of sur-reality. I have been teleported to the 1950s and spend most of my waking hours cooking, cleaning, doing laundry, working with kids on one thing or another, and curating precious items for our consumption or comfort (general groceries and paper towels in particular).” That did not feel like much to wake up for. So for a long time I wallowed. For three weeks, in fact, according to my journal. Time is so strange. During the same period that the days were forever long I didn’t have time to write. Riddle me that, Batman.

Anyhoo, I know for sure that those first few weeks were a doozy, with more emails about cancelled plans and “uncertainty” than I care to count. I literally still use whiteout and still have a daily planner so I get to laugh when I look back at my calendar now and see the indent of my pen marks for all the plans that should have been just disappeared from reality by the quick stroke of the whiteout brush. It reminds me of traveling in Madagascar, sitting at the airport waiting on a delayed flight. The airport staff would just erase the departure time on the chalkboard and rewrite a new time when the plane was ready to go – two hours delayed was suddenly, miraculously, right on schedule! It’s like the question of whether trees falling in the woods make a sound if no one can hear them. If the plans you didn’t do don’t exist, well, did you miss out on anything?

I have 154 pages (including lots of pictures) keeping track of the last 100 days to pour over one of these days. In sum, a haiku:

Grief. Plodding days. Fear.

April snow. Enough! Spring blooms.

Pollen, hope abound.

Or something like that! I do love a good haiku :-).

So, today – day 100 – I am not saying we need to celebrate. But maybe we might as well (we did, after all, flatten the curve (where I live anyway) so at least a pat on the back is warranted for that)? My March 12, 2020, post Don’t Freak Out, But Also Don’t Be Cavalier is still all true. With the benefit of hindsight, I can say that the puppy thing is very real as is the racism.

It’s a remarkable thing that the whole world is living through at the same time. I don’t think it’s particularly helpful to define this period as good or bad, but we should notice all of it, learn, and adjust. Maybe I will make a list for next time of all the things I have learned over this time. Camus sums it up well, but I am always up for a good list.

You will be alright.

Wash your hands.

Stay well, stay (close to) home?

Views from All Over

April 23, 2020April 17, 2022Meg

Well, it finally happened, folks. I hit a wall. It’s not that I am uninspired. I am just tired. So today will be short and sweet. I am diving into living in the moment at home, making sure I am paying enough attention to my kids in a less distracted way, and tending to my mom’s health situation and needs, which are acute at the moment.

Right now my kids and I are sitting on the porch in winter coats and blankets, basking in the sun’s warm rays like cats. We are listening to what’s around us, observing. Yesterday we set up a post at our dining room table to return to each week. We fling the wooden blinds wide and watch how our little world changes outside that one focused spot each week. It’s actually kind of miraculous, and I have never taken the time to watch spring unfold slowly before. If this were a recipe I’d say it’s one part making-the-best-of-things, a dash of keeping-my-kids-occupied-any-way-I-can, and a smidge of look-what-happens- when-you-slow-down-a-little.

This video, called When the World Stopped, takes us on a tour of the quiet that has enfolded on a global scale during this isolation period. Like my daily quest, it is both beauty and tragedy wrapped into one.

Stay well, stay home.

You will be alright.

Home School/Survival Resources

March 16, 2020April 17, 2022Meg

Hi everyone,

Just a quick note to all to say chin up, breathe deep, and stay well! I have put together a curated list of resources on both COVID-19, should you care to read more, and, even BETTER, on websites for keeping kids busy and engaged as we work through this tumultuous time. Check it out on my Resources page by clicking this link.

Be well and stick together (at least 6 feet apart). There is great irony in isolated solidarity. And in Guatemala closing it’s borders to the U.S. And in the fact that I never leave my house yet still can’t seem to get anything done.

Try to laugh. It’s nothing short of a weird, weird time. Let’s hope that unlike the French existentialist writers and filmmakers our current existential existence actually comes to some sort of conclusion. Gosh, how I detest the existentialist’s unwillingness to wrap up a story. Now to be tested. Maybe they knew more about reality than my proclivity for happy endings and no loose strings could fathom.

More to come. Together – and only together – will we rise beyond this.

Meg

Lifted Up By Letting Go

March 10, 2020April 17, 2022Meg

This essay was published in the March 2020 edition of Wellesley Living Well Magazine.

Life consumed me in the early years of motherhood: work deadlines were shoved into limited daycare hours; the frequent illnesses of childhood regularly upended any non-parenting endeavor; time for grocery shopping was elusive; exercise mostly consisted of bouncing with a baby and “lifting” out of the crib. During those demanding and isolating pre-school years I was diagnosed with Rheumatoid Arthritis (RA) and my mother with Alzheimer’s. I found myself wrestling with Pico Iyer’s question, “How to hold on to the things we love even though we know that we and they are dying. How to see the world as it is, yet find light within that truth.”

At the time, I struggled to find hope. The intensity of these divergent and demanding caregiving needs galvanized me to pay attention and not miss this time – any of it – while also laying heavily in my lap a palpable burden. Without exercise, I had no outlet.

Fast forward a couple of years and I found myself joining Crossfit Launchpad. CrossFit, it turns out, is more than lifting weights and intense cardio. The surprise – and what keeps me going back – is the community. Trust me, I never thought I’d say that – a gym that’s a community? But that’s what it is, and it is part of the formula of endorphins, nutrition, and a support system that helped restore my balance, clarity, and health.

Not only is my RA in remission now, but my Crossfit community has also helped me bear the heavy weight of caring for my mom. Outside the gym we gather monthly to make baby blankets for Boston’s Family Nurturing Center. I mentioned that a large version of these blankets, with their taggie ends and soft texture, would be ideal for Alzheimer’s patients. Without missing a beat, the group decided to make blankets for my mom. It would never have occurred to me to ask. My go-it-alone, never-be-vulnerable internal driver flared. I couldn’t have people spend their time doing that for me. I declined. They insisted. Eventually I let go.

And, what happened? I now have two soft, beautiful blankets for my mom. By allowing help, I was able to focus on other things my mom needed. By letting go, I allowed the number of hands who created those blankets – the number of people who touched my life – to grow exponentially. This turned everything I know about asking for help on its head – helping me can help you, too?

Life is an incredible teacher. Hope is restored in the most unexpected ways. This is universally true, if you are open to seeing it. My truth, this journey, has tested me with its bleak mercilessness. As in the depths of winter, I have at times been lonely and cold, wondering if it would ever end. And yet, I wrap my mom in her blankets and this act of support and community warms my soul. The light in my truth is all the people who have held my mom and me along the way. The smallest gift, the heartfelt gesture, the simple acknowledgement that the journey isn’t mine to walk alone, matter. Helping other people – and letting other people help you sometimes – are powerful antidotes to lost hope. Even on the darkest days there is light. Also, exercise helps.

art artistic black and white blank — Photo by Lynnelle Richardson on Pexels.com

What are We Without Our Memories?

November 6, 2019June 27, 2025Meg

My mom forgot my birthday for the first time six years ago. As an almost-forty-something, I didn’t need a big birthday party or lots of attention or anything like that. But it is a stunning milestone for a mother to forget the day that she brought her baby into the world. And for said baby, it was incredibly painful the first time it happened. There are some things that seem like they would be impossible to forget.

Especially for my mom, a woman who embraced motherhood fully and in every way. Raising my brothers and I was the best job she could dream of. That’s not just me putting on rose-colored glasses and saying so – she told me that. When I say our mom was our biggest fan, I am not exaggerating. She showed up in so many ways. She was on the sidelines for all of our games, only missing them if there was a conflict with another sibling’s schedule. She attended every ballet recital (a bouquet of flowers in hand), swim meet (day-long affairs in over-hot, heavily-chlorinated air to see your kid swim for 30 seconds), soccer game (sometimes taking up entire weekends for months on end, game after game), hours and hours of shuttling us to music lessons, baseball practice, soccer, tennis – you name it, we played it. Even in the early stages of Alzheimer’s she was there on the sidelines for Kindergarten soccer and witnessed her grandson’s first goal ever. It was 28 degrees, the field was covered in frost, her memory was failing, she was frightened about the future, her world was shrinking – and there she was. She showed up time and again – for us, for everyone in her family, and for her friends.

Grammy at K Soccer

My Beautiful Mom on Top of the World

Don’t get me wrong, we were far from perfect and I am pretty sure she had her moments when she wanted to run out of the house screaming to escape from us and the insanity we were causing her. In fact, she actually did so on at least one occasion, prompting our next-door neighbor, who had been out gardening, to come over and put his arm around her to comfort her. It kind of became neighborhood lore. So I know she thought we were royal pains in the ass sometimes – and we were – and surely she was overwhelmed keeping track of us and our schedules and our issues and, of course, the never-ending laundry. I imagine she had her moments of cursing us quietly under her breath, or venting to her friends or sisters on the phone. I am certain there were lots of things that got missed. My mom was chronically last minute in her approach to life. Her desk was a jumble of papers, binders, and – to my mind – complete and utter chaos. It looked like she didn’t sweat the small stuff, but I think the truth is that she was the world’s biggest procrastinator. You could count on her, but she’d make you sweat it out, tumbling through the door with the cake or hors d’oeuvres or whatever she had promised to bring just seconds before the start of a big event.

For my birthday, she would hang streamers in the dining room and bake a cake from scratch. She took cake-decorating classes to improve her skills, and – as cliche as it is to say it – she baked love into every morsel of every item she made. She planned epic treasure hunts in the woods for my friends and I – two-hour hikes with elaborate clues and “treasure” hidden along the way that ended at a river where we would feed the ducks with stale bread she had been collecting and freezing for months. It only occurs to me to wonder in hindsight how she got the clues placed and the treasure hidden all while baking and decorating the cake, organizing the party, and keeping up with my brothers and I. While those more elaborate birthday celebrations faded away as I got older, if I was home my mom would always bake her famous chocolate chip vanilla cake with cream cheese frosting (recipe below). If I was away, she sent a card and called. She was never extravagant, more of a simple but elegant woman. But she always acknowledged what a special day my arrival was for both of my parents and how much I meant to them. Like I said, this is the stuff that you would think you could never forget.

Beth’s Famous Birthday Cake

My Version – Looks Like a Giant Donut!

But forget she did, first six years ago and increasingly each year since as time for her becomes more and more of a loose construct and words and their meaning elude her. This year I baked her famous cake for my daughter’s birthday and brought her a slice to see if the taste brought back any recognition of all of these wonderful, deeply held memories. She liked the cake, smiled while she ate it, but otherwise was blank. For my birthday, I brought tea and cookies to her care home to celebrate. Because, really, my birthday is about us, maybe even more about her than it is about me if you think about it! She was happy as usual to see me, springing from her chair with delight, her hands swinging dramatically in the air to wave me over, a huge smile across her face. She loved the idea of a party, but I don’t think she really understood the birthday part. She used to break into song, part of her brain holding onto familiar tunes like Happy Birthday better than other things. But she didn’t sing this time. She just enjoyed her cookie and her tea, and I enjoyed her company. Despite all that I have lost of her, I still have that.

I am left wondering time and again as we face into Alzheimer’s ever more deeply, what is life without a memory? I read Atul Gawande’s book Being Mortal: Medicine and What Matters in the End and, while inspired, grateful for this new perspective, and appreciative of the recommendations for aging and dying well, I found myself wondering how one can have a meaningful, purpose-filled life and live life to the fullest until the very end if you can’t remember anything. Who are we without our past? It’s one thing to live in the moment, moment to moment. That’s enlightenment. But isn’t life, ultimately, a collection of memories? Isn’t that what we all aim for, to create wonderful memories? So many of my conversations start with, “Remember when?” What happens when you don’t? Without memories, what does it mean to be alive?

I don’t have any good answers. I just wonder. And I wonder what goes on inside my mom’s head, what she is seeing when she points to things that aren’t there, what she is trying to describe when she can’t find the words, what it feels like to entrust yourself and your well-being completely to another person.

Where is the hope in this? I don’t know. But there is definitely connection. There is some deep, biological recognition of one’s own, no matter what else has departed. And I guess there’s hope – or magic of some sort – in that. And there’s always cake.

Bethie O’s Famous Chocolate Chip Vanilla Cake

1 cup yogurt (plain or vanilla)

1 cup oil

2 cups sugar

3 cups flour

2 heaping teaspoons baking powder

3-4 eggs

1 bag mini chocolate chips

2 teaspoons vanilla

Mix. Bake at 350.

Tube cake – at least 1 hour

Flat cake – 30 – 35 minutes

Cupcakes – 20 – 25 minutes

Cream Cheese Frosting

1 teaspoon vanilla

3 ounces cream cheese

Confectioners sugar

Dab of milk

Mix to taste and consistency. And enjoy!

One Year Later

July 15, 2019April 17, 2022Meg

A couple of weeks ago, a good friend commented that she couldn’t figure out how I have time for everything I am juggling currently. From trying to keep up with my writing to spreading the word about the MAIA Impact School to keeping things together at work and at home, I am busy with a capital B. This got me thinking – where did the time and head space for all of this come from suddenly? Ostensibly all of my responsibilities are the same, so what changed?

I spent some time reflecting on this question and I’ve come up with a couple thoughts. One factor, surely, is that my kids are older. With greater self-sufficiency on their part, I have a longer leash. The time saved by them being able to apply their own sunscreen, tie their own shoes, or put on their own snowsuits is immeasurable. Well, okay, it’s probably 5 minutes each day, but those are some of the more tedious daily demands of motherhood so these milestones matter.

The term “labor of love” also keeps popping into my head. While all of my current endeavors involve work, time, and sacrifice, they also fill my cup. My life is purpose- and passion-filled, and that’s energizing. I used to have a real problem saying “no” so I devoted a lot of time and energy to activities and jobs that left me feeling depleted – or downright stupid and worthless. I am just slightly more strategic about how I spend my time these days. When time becomes a precious commodity, even the most self-sacrificial person learns to guard it more wisely. While I am still horrible at saying “no,” often lapsing into its almost worse cousin “maybe,” I do appear to finally be learning a modicum of boundary setting. Ahhh, your 40’s are good for something!

All that is meaningful and certainly adds up. However, I also lost my aunt this year, the amazing Fancy Nancy, and that sent me into an emotional morasse for a bit. The start of this calendar year I found myself sluggishly crawling through the days after she passed away, trying to get my head around the idea that this woman who was my guiding light and kindred spirit was suddenly gone. I quite honestly still can’t believe it. But these days when I feel scared or uncertain or sad, I can hear her faint but clear voice whispering, “Go. Live!” I think that she has made me braver and more determined.

And then there’s the fact that we moved our mom into a memory care facility last June. As the anniversary of that absolutely gut-wrenching decision and day came and went, I marveled at what a difference a year can make. I knew as my mom’s primary and long distance caregiver that I was working hard on her behalf, and I was aware that her well-being took up a huge amount of space in my life, but until she was settled into a care home I had no idea exactly how much.

Initially, the interventions necessary for my mom to maintain a mostly independent life were relatively minimal. Over time, as the course of her Alzheimers progressed, though, I spent more and more time triaging issues: making health care decisions, as well doctor and dentist appointments; ensuring communication about appointment outcomes and necessary follow up; staying on top of prescription medications; acting in an HR capacity hiring, replacing, and advising aides; organizing payroll and the weekly schedule; paying bills; sorting through clothes that no longer fit and paperwork that was piling up in her office; fielding calls from her aides and her friends with questions, observations, or concerns, and then doing the research to determine if what we were seeing was to be expected and what to do about it. That’s just a sample. Countless other little things would come up to turn an otherwise uneventful day into a fire drill.

For a while, it was all worth it. And then last spring after a visit to see her, I got the distinct sensation that we had reached the zone beyond the peak of the bell curve. My efforts to prop up my mom’s faux independence were less and less noticed by her and more and more consuming for me. I spent incredible amounts of time working on my mom’s behalf, but had almost no time to actually spend with her. After some intense reflection, I realized that if she had perspective on the situation, she wouldn’t want me to feel so sad and torn between my life with my young family and my responsibility for her life hundreds of miles away. And with that knowledge, I began to visit, and eventually chose, a care home for her.

I’ll tell you what. That process, culminating in leaving her for her first night there, was utter hell. I literally cried into my dinner of a bowl of ice cream accompanied by a glass of wine the day I moved her in. I then put myself to bed early, like an overtired, weepy child, both missing my mom as I grieved this moment in our lives and feeling overwhelmed by the responsibility for her happiness. Rationally, I know that’s crazy – you can’t make other people happy – but I still wish I could sometimes.

So here we are one year later. She is in fact perfectly happy. I don’t know that she has had one unhappy day since she moved to memory care. Her life exists in this exact moment. There is no past to dwell on, no ruminating about the future. There is just right now for her, and she seems to be quite amused by it. She knows she is loved, by the staff at her home as well as her family, and I think that’s what she always wanted. She has always been guided by what is in her heart, and that emotional clarity remains.

For me, I am my mom’s daughter again, not her business – heck LIFE – manager. It is one of my greatest joys in this mostly horrible Alzheimer’s journey to have my mom close to me again. She doesn’t know my name, but she knows I am hers (maybe her sister, maybe a friend, but sometimes “her little girl”). She lights up when I walk into the room and trusts me absolutely. We go for walks, and we have lunch. Sometimes I just stop in for 15 minutes to check on her. She comforts me when I cry, not understanding at all that I cry for her, for who she was.

Our mom always wanted us to be fulfilled and happy, and whatever our passions were became hers. She championed our efforts and was our biggest fan – always. One year later, I have achieved more balance and found greater purpose. One year later, I spend less time applying sunscreen to others, and more time with my mom. While I am still my mom’s biggest advocate and primary caregiver, it’s not all-consuming. This unexpected time in my life and space in my mind have allowed in more joy and light. If my mom could understand, I can visualize the smile that would break across her face and how her chest would swell in satisfaction. I am doing the best I can with the cards I’ve been dealt, and playing them to the best of my ability. Just like she and her sister taught me. Go! Live!

An Ode to Moms Everywhere

May 7, 2019April 17, 2022Meg

“I See You”

I see you, mom, in pajamas at school drop off. You who could care less about your appearance because the fact that the kids actually made it to school on time is such an accomplishment it hardly matters. Today. This time.

I see you, mom, who can’t say no to volunteering, who says no one else steps up so you have to do it, who feels like life turned into one long tumble in the washing machine, dizzying and cold.

I see you, mom, with your junk drawer completely overflowing with accumulated, well, junk. Like bumper stickers that aren’t car worthy and old iPhone chargers and receipts and spare keys to neighbor’s homes, if only you could remember whose they were.

I see you, mom, who got lost along the way and doesn’t recognize much of who you are anymore, spending all your time in the service of others, so much so that you couldn’t say what stirs your soul if you were asked and you fall into bed so dead tired you don’t have time to think about it. Anyway, no one’s asking.

I see you, mom, with the nice pump on one foot and the mismatched flat on the other. Some days the best you can manage is to show up.

I see you, mom, with spit up dried into your new, dry-clean only blouse. There is officially no dignified way to exit the house when you have a baby.

I see you, mom, on a frenzied mission, scrolling through websites for quick healthy meals for dinner tonight. Guess what? They don’t exist. Especially if it’s 4:30pm and you still have the commute home and day care pick up and you haven’t gone to the grocery store in days. Because, seriously, who has the time? What dimension of hell is this that kids need to be fed three times a day anyway???

I see you, mom, racing away from gas pump with the nozzle still in your car.

I see you, mom, who is starving for intellectual inspiration and adult conversation, but can’t figure out how to balance even part-time work with all the other stuff that needs to get done for the family.

I see you, mom, head throbbing, feverish, body aching while ringing way too loudly in your ears are the repeated and urgent words, “Mooooommmmm, I don’t feel well.”

I see you, mom, at Starbucks, who absolutely knows that this latte is going to be the highlight of your day.

I see you, mom, who tries to do it all, chaperone and sell Girl Scout cookies and make healthy, homemade meals and sign the kids up for all their activities and then actually execute on getting them there. Did I mention the full-time job?

Or the:

Birthday party planning

Dishes

Laundry

House cleaning

Haircuts

Lunch boxes

Homework

Bedtime routine

Sleepless nights

Doctors appointments

Play dates

Sick days

SNOW days

School supplies

Sports equipment

New clothes

New shoes, ideally well before you are leaving for the piano recital and realize that the dress shoes don’t fit. Either kid.

I see you, mom, who is buried under never-ending piles of laundry and groceries to buy and bills to pay and birthday presents to buy and holiday meals to make.

Did someone say decorations? Yeah, I see you, mom, whose holiday lights are still on the tree. In May. Way to plan ahead for next year.

I see you, mom, who wonders why it is that the kids have to be reminded to wash their hands, pack their school bags, unpack their lunches, clean their rooms, practice their instruments…EVERY. SINGLE. DAY. How many years have we been doing this?

I see you, mom, who feels like the trip leader of life, like you are everyone’s guide on this journey and they can’t seem to function without asking you how to do it first. And then they ignore you and do it their own way anyway.

I see you, mom, who is taking care of your mom, and missing her wise counsel and yummy cooking and mom advice. You, who are flooded with memories of the incredibly capable woman she was, and can’t reconcile them with the woman she is now, who barely knows you let alone remembers your birthday or a recipe.

I see you, mom, who lost your mom far too young. And, you, whose mom is alive and helpful and wonderful and still bugs the heck out of you sometimes.

I see the whisper of tears in your eyes that you quickly brush away, when some days it just feels like too much. Strong shoulders, but human shoulders. Vulnerable and tired and overwhelmed by the pace and the volume and the sensation that you are not terribly in control.

I see you, I see you every day, and I know.

I understand. And I am here acknowledging all the little things that just don’t get done without you.

In Solidarity.

Happy Mother’s Day.

In gratitude for moms everywhere and for my village.

It’s a good time to put your own oxygen mask on. This is another writer’s take on why:

https://greatergood.berkeley.edu/article/item/put_your_own_oxygen_mask_on_first

Please go ahead and share the good word!

Please go ahead and share the good word!

Please go ahead and share the good word!

Please go ahead and share the good word!

Please go ahead and share the good word!

Please go ahead and share the good word!

Please go ahead and share the good word!

Please go ahead and share the good word!

Please go ahead and share the good word!

Please go ahead and share the good word!